ARTÍCULO
TITULO

Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers

Patricia Masterson-Algar    
Kieren Egan    
Greg Flynn    
Gwenllian Hughes    
Aimee Spector    
Joshua Stott and Gill Windle    

Resumen

Young dementia carers (YDCs) rarely receive appropriate training and support. Their visibility and identification remain dangerously low, and, consequently, support initiatives being developed are failing to reach them. This study explored the success (or failure) of YDC identification pathways as well as the barriers and enablers to their implementation. An explorative qualitative approach was followed, drawing on the experiences of parents of YDCs, dementia researchers, professionals in the field of dementia/young carers, and young adult carers. Data collection involved semi-structured interviews (n = 17) and a participatory 2-h workshop to discuss and critique preliminary themes as well as explore strategies to increase the visibility and identification of YDCs. Five themes were identified: a ?whole-family approach? (as a pathway to identification), ?not a carer? (self/family identification), a postcode lottery (high variability of support services), tailored support that is ?fit for purpose?, and the ?power? of peer support. Recommendations on potential initiatives and actions that can help raise awareness and increase the identification success of YDCs are proposed. Our findings support the need for a broad and holistic approach to the identification of YDCs that runs alongside the development of support initiatives that are accessible and relatable. The support itself will play a role in improving subsequent identification or hindering it if not ?fit for purpose?.

 Artículos similares

       
 
Céline Leclercq, Lutgart Braeckman, Pierre Firket, Audrey Babic and Isabelle Hansez    
Most research on burnout is based on self-reported questionnaires. Nevertheless, as far as the clinical judgement is concerned, a lack of consensus about burnout diagnosis constitutes a risk of misdiagnosis. Hence, this study aims to assess the added val... ver más

 
Tara Hunt, Coralie J. Wilson, Peter Caputi, Ian Wilson and Alan Woodward    
Telephone crisis-line workers (TCWs) are trained in a variety of techniques and skills to facilitate the identification of suicidal callers. One factor that may influence the implementation of these skills is gender. This study used an experimental desig... ver más

 
Gilles Grandjean, Loïc Thomas, Séverine Bernardie and The SAMCO Team    
In our study, we present a proactive decision support tool able to compute the impacts of different possible scenarios for territories impacted by mountain risks. The objective of this work was to develop and test various hazard and risk assessment metho... ver más
Revista: Climate

 
Bradley Ridoutt, Peerasak Sanguansri, Lawrence Bonney, Steven Crimp, Gemma Lewis and Lilly Lim-Camacho    
Climate change adds an additional layer of complexity that needs to be considered in business strategy. For firms in the food industry, many of the important climate impacts are not directly related to food processing so a value chain approach to adaptat... ver más
Revista: Climate

 
Feng Wang, Wenwen Li and Sizhe Wang    
Arctic cyclone activity has a significant association with Arctic warming and Arctic ice decline. Cyclones in the North Pole are more complex and less developed than those in tropical regions. Identifying polar cyclones proves to be a task of greater com... ver más
Revista: Climate